This morning at Hanger Nick and I were feeling pretty cheerful. He was still sore from the previous days miracle work but he was ready for more and he was excited to receive the knee portion of his ExoSym.
By the end of the morning he did this:
And I think it speaks for itself. It wasn’t easy. He’s feeling sore but he’s aware of the difference between soreness and pain. He’s found the sweet spot as he calls for using the ExoSym effectively when stepping.
I really want to thank every person at Hanger for making this possible. I love that Nick gets to work out in a gym with others with the device. I am in awe of everyone there and in awe of the brace itself. It is, in the words of Beth, exosymply amazing!!
So maybe this song deserves a full life spread but this video is this lengthening only. It’s not perfect but it made me happy to make it and share it here. I heard this particular song for the first time a few months ago and since I didn’t have a theme song for this lengthening… well now I do. I am so amazed that Nick is full weight bearing already. I knew it was possible but wasn’t counting on it.
The look on Nicks face when Dr. Standard told him was pure joy. A few months ago a mom in the support group wrote about how amazing it is to get to watch your child take their first steps more than once. As moms of kids with fibular hemimelia we may witness pre-surgery first steps, then in fixator first steps, then post surgery first steps and possibly many more. We may not get that milestone “on time” but we may get it 10x over! That joy adds up!! My heart is overflowing. I feel privileged to mother this boy and travel this journey with him.
I’ll post more details about todays RIAO visit another time. It was great!