Normal Nick

I have dreaded writing on this blog. Sometimes it feels like every time I write something positive something bad happens. I know it’ silly but it worries me.

However I am taking a chance and writing anyway. Nick seems to be back to “normal”. Normal is not my favorite word anyway but still he is just living life like a regular kid. He’s walking and running. He’s going out to play with friends. He’s not in pain.

That’s the best kind of normal there is for us. Not in pain and moving freely. It’s good timing too because this weekend is the 7th annual save a limb ride. We have been there each year. We’ve not always rode or walked but we’ve been there. This year we will have a fibular hemimelia table. I am so excited to meet some of the families who I have known on line for months or in some cases years. This year will be so special because of this and because Nick had such a hard year and is doing so well now.

Another thing I have realized is that I have actually helped a lot of people by writing this blog and creating the Fibular Hemimelia and Limb Lengthening Awareness Facebook group. We didn’t raise as much money as we wanted to this year (it was a hard year for us as a family) but we are working year round to support the fh families. I get multiple messages each week from folks looking for advice or support and I am always happy to help. I am so grateful to these families who reach out to me. Helping them has been so meaningful. Everyone likes to feel useful and it makes me feel very useful. I also appreciate all the appreciation! Reading about how I have helped someone warms my heart so much.

Nick has been though so much. This is all about him after all but it is actually about our whole family and me as a mom (that’s a lot of what I write about). Being able to make the most of what life gives us is something I am proud of. Being able to take it a step further and help others gives my life additional meaning. I don’t know how many families have been touched by this blog. I don’t even know how many I have emailed with but I know that I am thankful to them for reaching out to me. My life and my heart are fuller because if it. I believed this is something I am meant to be doing. Call it a calling or call it whatever you like. It is, next to parenting, the most important thing I have done with my life.

Check out the No Fibular No Problem Fundraising Page and please give if you can! You can help save limbs too!

2 thoughts on “Normal Nick”

  1. What a wonderful and refreshing blog this is. It’s funny how I came across this blog to begin with. My nephew has Fubular Hemimelia and it’s been so lonely and stressful on the entire family because we have no one to connect with or ask for advice on this condition. We were beginning lose hope in ever finding an organization to help with financial obligations, doctors who specialize in this kind of surgery, a hospital, you name it! But then I found this lovely blog that has answered all my prayers! I want to learn more about what I can do to get my nephew the surgery he needs, the different support groups for his journey and so on. I would greatly appreciate it if you can be my first friend in helping my nephew.


    1. I am glad you landed here! There is actually a web chat with Dr.Standard this Thursday at 8pm (eastern). Please come! I will post the info tonight. You have to email the moderator for approval. If you go to the international center for limb lengthening Facebook group the info is there already. And check out fibular hemimelia and limb lengthening awareness on facebook.

      Plus you can email me at Jenniferocurley at gmail dot com.

      Your family is not alone! Not by a long shot. The beginning can be the hardest part. It’s scary not knowing what’s possible. Your nephew will have a full and beautiful life! I promise.


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