Today we got back from a great little vacation. We were upstate NY for a few days and it was perfect. We swam, relaxed with family and ate great food that I did not have to cook! Nicholas did really well. He is still not walking like he was before the removal of the foot plate but he is trying. He wants to walk but gets tired because he still is not fully weight bearing on his right leg so he limps. He really is self conscious about it. He told Steven that he did not want his cousin Kentie to see him limping and that he was embarrassed that he is not walking. We did our best to reassure him but clearly it is bothering him.
Swimming was great and was a great break from walking and the playground, which is where he spent good deal of time too. He climbed all over the place without any trouble and met lots of new kids and answered lots of questions about his fixator. At one point someone asked him about the cover he had on it and he thought the woman as asking him to show her what was under the cover so he told her “I like to keep that private”. It was cute really.
Our only real drama was that a set screw came off of one of his half pins. The previous night Nicholas had banged his leg really hard on the bed frame and even bled around one of his wires. Nothing appeared to be wrong at the time and I am not sure if this had anything to do with the set screw but Steven fond the set screw off in the morning. I would never have known what it was had I found it so I am so glad it was Steven. I asked him to call Dr. Standard because he could explain it much better since he actually knew what it was. This explanation is really inadequate too! Dr. Standard returned our call and left a message saying that Seven should put it back in and to call him back if there was any trouble. Thank goodness the place were were staying had an extensive work shop where Steven found an Allen wrench and secured the half pin.
Crisis was averted and we really had a lovely time. We had to come home a bit early for Nicholas’ kindergarten open house. New situations do make me nervous for him so it was important to me that we be there. Worrying that someone will say something that will hurt his feelings occupies me more than it should. I wanted him to get to meet some kids before the first day since we really don’t know anyone else starting kindergarten this year. When we got there I found out that his teacher did not even know about his fixator. I could not believe she had not been given that information after all the people I talked to and paper work I filled out. It irritated me that I had to explain it all to her when we were there for Nicholas to meet her, meet some kids and see his classroom. He walked away and introduced himself to a shy little boy while I explained things to his teacher (I am sure this explaining has gotten boring for him to hear). She was very nice and I am sure everything will be fine but I will still worry.
Many of the kids played on the playground after the open house and Nicholas was no exception. Although I was the only parent who was standing within earshot of the kids. I knew someone would ask him about the fixator, plus I wanted to be close by in case he fell or something. When he was asked about it I did not hear what the question was but I heard Nicholas say “I’m okay. It’s just an external fixator for leg lengthening” then they went back to playing and it never came up again. Now I just have to believe it myself.